Development of an ICHOM Standard Set of Outcomes for Child and Youth Anxiety, Depression, OCD, and PTSD (2018-20)

Research Fellow

Between October 2018 and March 2020, the International Consortium for Health Outcomes Measurement (ICHOM) convened an international working group of 27 experts by profession or lived experience from 13 countries to develop a standard set of outcomes for child and youth anxiety, depression, OCD and PTSD. Through a modified Delphi-consultation and iterative anonymous voting, the working group reached consensus on a standard set of outcome domains, measurement instruments, case-mix factors, and measurement time points. The standard set is the first global guidance for measuring outcomes for pediatric anxiety and depression (including OCD and PTSD) in clinical practice, and a first step towards harmonizing measurement approaches.

Karolin Krause
Karolin Krause
Post-Doctoral Researcher

My current work focuses on bringing the person as a whole back into personalized medicine. Using mixed methods and an interdisciplinary approach, I explore avenues for incorporating patients’ psychosocial characteristics (“personomics”) into the tailoring of treatment plans, to move beyond personalized medicine’s current focus on biological markers towards a more holistic approach to personalization. Previously, my research has focused on strengthening approaches to outcome measurement in youth mental health, with a focus on functional impairment, and the development of core outcome sets for youth depression and anxiety.